What we do

The ILC provides i) accredited education conferences & webinars for healthcare providers and individuals living with Ehlers Danlos Syndromes (EDS), its related rare diseases and Chronic Pain;  ii) awareness campaigns to reduce the stigma; iii) free online self-management tools and support services and coaching; iv) engagement with health systems partners on quality improvement initiatives to improve outcomes and collaborate with research institutions, researchers and other partners in the non-profit sector to foster research on EDS, its related conditions and Chronic Pain and impacts from pain.